Scoliosis: Life, Support & Friends

Well, I have been up front and sharing since I joined the Scoliosis community over 5 years ago so I decided I would not stop now, I am sure I will not say something here that has not crossed the mind of many chronic pain sufferer with Scoliosis! But I have never been one to mix my words so I will not start now :) I think this week has to be in my "Top 10 Pain Weeks with Scoliosis" and finally I gave in, went to see the Dr and got myself some drugs! While we are at it, let's throw some facts in here - where does the word drug come from? Well it turns out that the word comes from the Dutch word droog, which means dry because most drugs (medicines) came from dried plants - so there you have it, cool fact for the day hahaha! I have always had a problem with the donor site as many of you well know (donor site = where they take bone form the hip to place around the spine) but these past few months it seems to have changed and would swell constantly rendering me unable to...

I went to Spine School last night, I wasn't looking forward to going after a hard day's work but I will do what my Dr has requested. I had to be there for 7:30 start so I left home 30 minutes before and headed off to Marbella, got there on time but then the receptionist took forever to put my payment through so I ended up having to wait ages and then I was the last person to join the class and I hate walking into a room where everyone is waiting for me, they turn and stare at you. So, basically the class was Yoga but concentrating on the lumbar spine, as a person who has done Yoga for many years it was all new to me and I was surprised by this, there were many new moves that I had never done before, some of the moves I really struggled to do and just couldn't get up like she wanted me to so I had to get up from the floor as I would normally. The instructor was Spanish and the class was all in Spanish so I struggled a bit there, I have a good understanding of the Spanish lan...

I started my Yoga last night as I said I would be doing, a friend came round and we did it by the pool, we took our time as she has not done any exercise for a long time and it must be a year since I did Yoga also. It felt good to be doing the stretches, especially the ones that work the muscles over my shoulder blades, however, I still have the same problem that I was talking about yesterday, the awful pain when I wake up in the morning, in fact most nights I am woken up because of it. I am OK when I get up but it is laying down that is causing the problem, I cannot lay on my side, back or front without immense discomfort and pain. I am stumped because I have never had a problem sleeping (since I had my memory foam ) but now I am just not getting any sleep, if I bring my legs into a foetus position it is slightly better - could I have strained anything you think, will this pass or should I go and see someone about it. I am starting to get annoyed with this because I am not getting e...

I was feeling absolutely fine, had just finished eating my breakfast, I was sat in my bean bag with my legs slightly apart as my surgeon told me this aides the spinal cord. I tried to get up from the bean bag with plate in hand when I had this awful shooting pain which caused me to fall to the floor and immediately start crying as I was unable to get up, this is the second time in a few months the same muscle has given way, perhaps it was the bean bag who knows. I spent the whole week in bed following that escapade, unable to move even my feet, by day 3 I was able to get to the toilet a lot easier, I had this time been able to get to the toilet with the aide of a stick and I was able to wash myself in the bath tub using my fold out chair to sit on, although it was very painful as I could not hold my body straight I was bent to the side and bent over forward so of course the rest of my body started to ache due to me being in that awkward position. The pain I felt was just a pulled muscl...

Since my awful pain in August I have started to make a come back and even managed to some Yoga each week, I do still find that I walk bent over at the end of the day and the sofa we have I hate and it is getting up from that which doesn't help, I did buy a bean bag and that is much nicer for me. September and October were fairly good for me, no tears anyway! I even went on long walks and I have not been able to do that for a long time, so long as I take my time and sit when I need to and make sure that I have my heat patches with me in case the lower lumbar pain comes back with intense force. However, I did have some trouble with my rod last month and it seemed to be poking further at the skin than ever before and I needed to use Gel on that to stop the pain as that did bring me to tears, I needed my cushion that is made of tiny little balls inside and nice material so it forms any shape as I could not lay down without it as the rod was hurting too much. Because I have not written ...