Scoliosis: Life, Support & Friends

On Saturday 31st March our How To Look Good Twisted Facebook group met in Manchester, Piccadilly for the second meeting of our twisties. It was all rather hectic, I started my journey with my friend James Fooks from Spain on Thursday 29th March. I was very anxious, nervous and excited for many reasons really, the main one being Chris was not beside me for support which I have always leant on heavily, and if it wasn't for him (who sadly died 11 April 2011) the group would never have been formed. Secondly, I was about to meet one of the moderators; Laurie Knutowski Skusevich , who had left the previous day to start her journey from the USA across the pond to the UK. I was extremely touched by the reason Laurie decided to join us and travel 4,000 miles! Laurie had told me that one night on her way home from work she had paid particular attention to the moon and Chris came into her thoughts. She had never been to the UK before and felt that due to the sudden death of Chris she...

I am now 3 days into taking my new treatment and while I have not noticed any significant changes in my body I think it is too early to tell, I was told I may need a double dose to get me started so we will wait and see. It would appear I am going to have a run of bad luck with the old Twisted Spine! My go faster stripes are not working and I am slowing down. I am having considerable amounts of pain in my lumbar, right where my donor site scar is, I cannot relax without feeling HUGE pressure on the scar, which is very painful and makes me catch my breath. I even had problems on the toilet this morning and that just gets me frustrated, the simplest of actions that any normal person takes for granted is such an effort for me this week and I end up getting really pissed off!!!!!!! I had to drive my Mother to the airport earlier because Chris is up to his eyes with work so he needed to stay home and finish his "to do list", I have to say it was the most painful drive of my life, ...