Scoliosis: Information & Supports Needs
Scoliosis journal published research towards and understanding of the information and support needs of surgical adolescent and idiopathic scoliosis patients: a qualitative analysis Authors: R adha MacCulloch , Sandra Donaldson , David Nicholas , Joyce Nyhof-Young , Ross Hetherington , Doina Lupea and James G Wright Abstract (provisional) Background Informed decision making for adolescents and families considering surgery for scoliosis requires essential information, including expected outcomes with or without treatment and the associated risks and benefits of treatment. Ideally families should also receive support in response to their individual concerns. The aim of this study was to identify health-specific needs for online information and support for patients with adolescent idiopathic scoliosis who have had or anticipate having spinal surgery. Methods Focus group methodology was chosen as the primary method of data collection to encourage shared understandings, as well as permit...