Scoliosis: Life, Support & Friends

ScoliosisJournal report: Treatment of scoliosis in patients affected with Prader-Willi syndrome using various different techniques Authors: Tiziana Greggi, Kostas Martikos, Francesco Lolli, Georgios Bakaloudis, Mario Di Silvestre, Alfredo Cioni, Giovanni Barbanti Brodano and Stefano Giacomini Background The incidence of spinal deformity in children with Prader-Willi syndrome (PWS) is high, with 86% of these patients found to have a significant structural scoliosis; however, there are very few case reports describing surgical treatment for this deformity. Methods The authors reviewed a case series consisting of 6 patients who underwent spine surgery for scoliosis. Children's mean age at first surgery was 12 years and 10 months (range, 10 to 15 yrs). Clinical evaluation revealed the typical phenotype of the PWS in all of the patients; 4 subjects had a karyotype confirmation of PWS. Major structural curves showed preoperative mean Cobb angles of 80.8degrees (range, ...

Scoliosis Support Website It has been 2 days since I last wrote and life has got slightly easier since I have had my first Bowen session . Wednesday was a hard day and early morning but by Thursday night I was able to move my head from side to side again and the neck pain has subsided, when I came back on Tuesday I was in agony and couldn't look left or right without moving my whole body. I went to bed at 1.30 on Wednesday morning and woke at 6am, took some Ibuprofen and got into the spare bed and made myself a little pillow camp and settled there until waking at 9am, I cancelled my appointment to see the Orthopaedic Dr in Benalmadena because the car alarm went a bit dodgy and we couldn't get the windows up, on the dash it said all 4 doors were open and the indicators kept flashing so I could hardly drive the car and park in a public car park and leave the windows open! I got back into bed - yes you hear me right, I got back into bed and slept until 11am, I was so amazed as I h...

I had to cancel my appointment for Bowen technique last week due to work commitments, a client called me the day before and said he would be landing at Malaga airport at 9:30 in the morning, so I re-scheduled my day to fit him in which meant cancelling the appointment. At 9:15am we got a call telling us he had missed his flight! My whole day was turned upside down for an event that was not about to happen, pissed off is a good description of my feelings that day. My client finally arrived 2 days later and the meeting went well, the outcome was just as I had hoped for :) I have still not settled down with my sleeping pattern and the last few mornings I have been up and about pre 7am after going to bed at 1am (that I could deal with). However, this morning I woke up in pain as usual, messed around with some pillows under my knees and shoulders, raised the head of my bed, turned on my side in the foetal position, tried laying on my back again and then the other side - couldn't settle...

Well, still in the same predicament - not sleeping much and terrible pains in the morning, not being able to lay down flat, on my side or front - it is driving me insane, although one good thing has come from it - getting up earlier so I am starting work earlier also. I am getting up now anytime from 6:30, now to some of you that may not sound too bad but we work from home, remember? So, we are usually up around 9am to start work for 10am (typical time for Spanish businesses), so this is now waking me up a good few hours earlier than normal, once I am awake, I cannot stay there because my back pain is just too strong. My husband is loving it because he is now getting his breakfast made for him every day and a cup of tea brought into him while still in bed (bring him round a bit, he is not the happiest of people in the morning!). I am still searching for a good Scoliosis Dr in Spain but have yet to find one. I contacted Mills & Mills this morning and I am still waiting for them to c...