Showing posts from September, 2010

Ch-ch-ch-changes naaananana (Cha-cha-changes)

It's been a while, dear friends of the Scoli-verse. Last week I moved down to Lethbridge which, for those of you with any idea of what the province of Alberta is like, is a bit different from Red Deer. When I say different I of course mean dear god I can see for miles. Literally, miles. That's not the worst part however. As I'm sure I mentioned before, my mom and I have been on our own for quite a few years. I do have two older brothers but they're four and six years older than myself and for the most part either emotionally stunted or just too far away to be of any use.

That means for the last ten years I have been 'dealing' with my scoliosis issues using my mom as a primary support. Let me tell you, it's more than a little unnerving to suddenly have your entire support system suddenly not be there. Of course, that's a little melodramatic. She's with me in spirit, and we've talked every single night (most of the conversations end in tears, I won…

This Scar - Song

This song appeared on our group Facebook group this morning and as I thought Lisa had done a grand job in singing about her scoliosis I wanted to share it here too, you can watch the video below

The Lyrics
Copyright 2008 Lisa Nicole Grace.
Lisa says "This is a song I wrote about my life long journey with scoliosis - curvature of the spine. This November marks my 8 year anniversary of my spinal fusion surgery"

This scar, tells a story
And it always reminds me
Of where I've been
This scar, runs from the nape of my neck
Down to the small of my back
And it's part of who I am

After nine long hours
Of blood, sweat and tears
My mama and my daddy
And a hundred prayers, I'm standing here
I'm standing here

With this scar,
That represents my life
A good old fashioned fight
A willingness to survive
This scar,
Says it's okay to be scared
As long as you're prepared
To learn how strong you are
This scar

This scar, taught me a lesson
That I won't be forgetting

2nd Annual Move-Athon, New York

On September the 12th, 2010 the 2nd Annual Move-athon will be taking place in New York!
Move-athon: Making My Moves So Others CanSharon is a member of our How To Look Good Twisted Facebook group and wanted to help spread the word about this year's Move-athon. Sharon represents the Pediatric Orthopaedics division of the NY-Presbyterian Morgan Stanley Children's Hospital in New York City. The division specializes in treating babies and children with congenital, developmental and traumatic musculoskeletal conditions. "Our team is committed to providing superior orthopaedic care for children. Children from everywhere, not only New York, receive top-quality care for their orthopaedic conditions at the Morgan Stanley Children's Hosptial of New York Presbyterian" says Sharon.
NY-Presbyterian Morgan Stanley Children's Hospital

Specialty Centers
Early Onset ScoliosisClubfoot Center of New YorkScoliosis Center of New YorkNeuromuscular Disorders Center of New YorkPediatri…