Scoliosis: Life, Support & Friends

Hey, fellow ScoNuts. Sorry for my lack of posts, but minus the surgery, there's nothing very interesting about my day-to-day life. At least, nothing none of you aren't already painfully familiar with. I moved in with my boyfriend, and he's being wonderful to me. He does everything for me, despite my protests; consequently, I have become even more sedentary (I didn't realize that was possible), so my pain has skyrocketed. I know I'm gaining weight, too. I still don't have insurance, but I have the option to buy a policy from the company that used to insure me. Of course, who's going to insure me with a spine like mine? At best, it'll be labeled a preexisting condition and excluded completely. So I have to apply and be approved for disability before I can go back to St. Louis, and God only knows how many years that will take. Dr. Bones wanted me to wait ten more years, and now it looks like I might have to. :( I've got some tips about good disabi...

Scoliosis Journal recently reported the following article which talks about the long-term outcome after Boston brace treatment in adolescent idiopathic scoliosis. Authors: Johan Emil Lange, Harald Steen and Jens Ivar Brox Published: 26 August 2009 Background Few studies have evaluated long-term outcome after bracing using validated quality of life outcome. The aim of the present study was to evaluate the long-term outcome in adolescent idiopathic scoliosis (AIS) 12 years or more after treatment with Boston brace. Methods 109 (80 %) of 135 patients (7 men) with AIS treated with Boston brace at a mean of 19.2 (12-28) years previously responded to long-term follow-up examination. All patients (n = 109) answered a standardised questionnaire including demographics, work status, treatment, Global Back Disability Question, Oswestry Disability Index (ODI) (100-worst possible), General Function Score (GFS) (100 - worst possible), EuroQol (EQ-5D (1 - best possible), EQ-VAS (100 - best possible...

Yeh, I sorta forgot about writing in to the blog after I got my new brace but I have finally remembered. My new brace isn't much different from my old brace, except it hurts a lot more!!! Now I remember why I used to not mind going swimming! Speaking of swimming, does anyone else here HATE going swimming for their back? Coz I have never been a swimmer and can't stand it! Anyway, so I went to the hospital on Thursday and got my new brace. It was obviously taller and made me stand uo even straighter than I had been standing before! The doctor took away Soapy, my old brace. So I went home and lied down (because I could hardly breathe!) and had to take the next day off school as well. I don't like my new brace much. I've called it Bossy the Boston Brace (yeh, I know, very original!) and it kills at times! It doesn't even have holes all over it yet. When I breathe in suddenly, air rushes out of somewhere and makes a huge wooshing sound. My old brace did NOT do that. Now ...