Scoliosis: Life, Support & Friends

I have been having yet more problems today with my right hand side hip and what I assume is the muscle having a spasm or some kind of cramp. When sitting I cannot lean my head onto my chest without a pain coming from that side of my body, the pain shoots straight up that side of me into my head which makes me pull my head back up. Driving has become more difficult than I ever expected, although I do drive an automatic car which is slightly easier but if I need to look behind me or turn around with my upper torso it becomes difficult for me. I have spent most of this week in bed again (seem to be there a lot these days), continually making sure that I try and get up every hour and attempt to stretch and even do Yoga, however, the pain when trying to get out of bed is awful, I find myself holding my back as I attempt to get up but on my way to standing it almost cripples me to stand and then I cannot get comfortable anywhere then without pain. I never used to get up every single day and ...

I have not updated my diary for a while as my symptoms have not changed much, I was still using the wheelchair on Saturday 13th August as walking was a great effort and feelings of pressure built up as if my spine was going to explode, I think that last bought of pain was related to my period as I always suffer in the lumbar when I get my period. Since Sunday 14th August I started to get better but standing up from being sat down I walk bent over for a few seconds before I can force myself to stand up straight and I walk with my legs far apart because I cannot do it any other way. I tried swimming on Sunday also and could only manage 9 lengths which is not very good as before I was doing 20 without stopping, Yoga is out of the question but I am going to try and cycle and see how that feels. I have yet to start my Glucosamine/MSM/Chondrontin formula, perhaps this will help more? I have started questions for my surgeon so we can discuss where to go from here. List of question for surgeon...

I got up well this morning and as per usual feel great in the mornings, I have not used my wheelchair as much today, if I have needed to get anything I have got up from the chair and walked, although sometimes it is painful to do so and I am still walking tilted to the right and now the muscle has a niggle but if I try to straighten my spine it hurts so I don't do it!

Having a better day today than yesterday but walking is painful and everything is such a great effort, my friend brought a wheelchair around for me and that has been such a great help to me at least I can get around and I am not laying in bed all day long, I can come upstairs and get to the fridge and so on. Pains seems to be reducing for the first time this week.