Scoliosis: Life, Support & Friends

On Saturday 31st March our How To Look Good Twisted Facebook group met in Manchester, Piccadilly for the second meeting of our twisties. It was all rather hectic, I started my journey with my friend James Fooks from Spain on Thursday 29th March. I was very anxious, nervous and excited for many reasons really, the main one being Chris was not beside me for support which I have always leant on heavily, and if it wasn't for him (who sadly died 11 April 2011) the group would never have been formed. Secondly, I was about to meet one of the moderators; Laurie Knutowski Skusevich , who had left the previous day to start her journey from the USA across the pond to the UK. I was extremely touched by the reason Laurie decided to join us and travel 4,000 miles! Laurie had told me that one night on her way home from work she had paid particular attention to the moon and Chris came into her thoughts. She had never been to the UK before and felt that due to the sudden death of Chris she...

I have been meaning to blog about the meeting we had in February for the UK Scoliotics since returning but life has been so hectic I have just not had the time! So please don't shoot the messenger here for being late on her blogging ;) We met at La Tasca in Victoria, London at lunch time on the 19th February, we had a great turnout with people coming from all over the UK and of course Spain! I have listed the people who attended below. Maria from Uttoexeter, Staffordshire Megan from Cambridgeshire Judith from Mill Hill, London Linda from Croxley Green, Watford Krysie from Coventry Karen from Hurst Green Simone & Chris Icough from Spain  Evi from London Lisa from Kent Janice from Sunderland Gail from Hull Janet from London Alana from Spain The venue itself were very helpful, they threw in some free jugs of Sangria, (which seemed to go to Maria's head - hahahaha, although I think she enjoyed it ;) and 5 pounds off the menu price per head, we had a great ...

Yesterday we Steven and I decided to organise a Scoliosis meet up event in London so we can all get together, have a chat or a rant, share experiences and generally just chat to another person with Scoliosis and put faces and cuddles to names, considering we have all been networking together for some time on the internet we felt it was time to see and touch each other in the flesh. We would like to invite anyone with Scoliosis inside or outside the UK to join us, we have yet to confirm the venue but as London is within reach of most people we have chosen that as our destination, we are looking for somewhere we can sit down as a group eat, drink and be merry together :) If you have any suggestions on a venue then please be sure to comment here and tell me why the venue would be a good choice so we can have a look and perhaps send a Londoner on a scout for us hehehehe! Look forward to meeting fellow Scoliotics in February and here is hoping we can build our meetings to great level...

The Scoliosis Association (UK) will be holding a meeting specifically focused on infants in London. The meeting will be held on Saturday 26th June, 2010, at the Sir Herbert Seddon Teaching Centre at the Royal National Orthopaedic Hospital in Stanmore, London. The meeting will be hosted by Mr Hilali Noordeen FRCS who, along with a team of scoliosis specialists, will be discussing the causes and diagnosis of infantile, juvenile and congenital scoliosis, treatment options and current research. There will also be parents discussing their personal experiences of coping with the condition and opportunities to ask questions and chat with other families. This is the first infantile meeting that SAUK has held for many years and it is a fantastic opportunity for parents of infants or young children with scoliosis to get dedicated information and to pose questions to scoliosis specialists. For more information please contact: 020 8964 5343 or visit the SAUK website where you can sign up onl...