Scoliosis Meet Up Event

By -
Yesterday we Steven and I decided to organise a Scoliosis meet up event in London so we can all get together, have a chat or a rant, share experiences and generally just chat to another person with Scoliosis and put faces and cuddles to names, considering we have all been networking together for some time on the internet we felt it was time to see and touch each other in the flesh.

We would like to invite anyone with Scoliosis inside or outside the UK to join us, we have yet to confirm the venue but as London is within reach of most people we have chosen that as our destination, we are looking for somewhere we can sit down as a group eat, drink and be merry together :)

If you have any suggestions on a venue then please be sure to comment here and tell me why the venue would be a good choice so we can have a look and perhaps send a Londoner on a scout for us hehehehe!

Look forward to meeting fellow Scoliotics in February and here is hoping we can build our meetings to great levels and really start making a difference to us all!

Simone and Steven

Popular posts from this blog

Ugly Betty star Wilhelmina has Scoliosis

By -
Image
Ugly Betty star Vanessa Williams has Scoliosis. Before Vanessa became a famous star through her seasons of Ugly Betty she was to be a dancer. Vanessa was recently nominated for an Emmy for the 2nd time for her role as the wicked diva Wilhelmina Slater in Ugly Betty. For those of you who have not heard of Ugly Betty, it is an ABS comedy hit show dedicated to Mode magazine and the world of fashion. Vanessa Williams wanted to be a professional dander with the Joffrey Ballet until those plans were cut short by Scoliosis. (curvature of the spine) Vanessa is reported to have said "It derailed me for a while,". "It was so severe I had to have a spinal fusion where they put 8-inch metal rods and screws in my spine. I just took off one year where I didn't do any physical activity. But then, of course, I was terrified. It's so strange … It felt like having an operation and then healing and going back to your real body. It was really like having a new center of gravity and ...
Read more

Curving again?

By -
Image
I have noticed just recently that I seem to be leaning left again and walking is becoming a real struggle, I only noticed this the other day when I had my jeans on and I saw myself in the mirror (not something I do very often especially as it is cold). I was shocked, my right side is fairly straight and flat (not too much flab) - my left side is almost folded in half and I can wedge my hand in between the fold that appears there - I look awful!!!!! Is it even possible for me to start curving again and my Scoliosis show signs again after a Harrington rod surgery 19 years ago? I never used to be conscious over my body years ago and I know it changes the older I get but I am no bigger than I was when I got married at age 24 and I am now 31, I hate my clothes I do not feel comfortable at all and I hate it when people look at me when I am walking down the street in a sideways crab walk!! I have even added a picture of my back, I never thought I would share that with the world because I am ...
Read more

Scoliosis and Memory Foam Mattresses

By -
Image
I have been receiving many emails about memory foam and whether it actually works. I will let you into the secrets of my good night's sleep and what I think about memory foam and why it has helped me so much, for starters I no longer sleep with Valium, I simply don't need it. The memory foam that I sleep on was invented by a guy in the UK, who, unfortunately does not have the dollars behind him that his competitors like Tempur do, therefore he has not been as recognised as a brand name like he should have been - it's all down to money, and what a shame that is. I have heard great reports about Tempur mattresses and I have tried one, however, I have to say that their product is not as wonderful as the OroMed Sleep System that I use - you understand that this is MY personal opinion and I am entitled to have one ;) I started my quest for memory foam 4 years ago, I just couldn't sleep and was getting beyond my tether of walking around the house at night in tears because I ...
Read more