Scoliosis: Life, Support & Friends

Well, I have been up front and sharing since I joined the Scoliosis community over 5 years ago so I decided I would not stop now, I am sure I will not say something here that has not crossed the mind of many chronic pain sufferer with Scoliosis! But I have never been one to mix my words so I will not start now :) I think this week has to be in my "Top 10 Pain Weeks with Scoliosis" and finally I gave in, went to see the Dr and got myself some drugs! While we are at it, let's throw some facts in here - where does the word drug come from? Well it turns out that the word comes from the Dutch word droog, which means dry because most drugs (medicines) came from dried plants - so there you have it, cool fact for the day hahaha! I have always had a problem with the donor site as many of you well know (donor site = where they take bone form the hip to place around the spine) but these past few months it seems to have changed and would swell constantly rendering me unable to...

I am now 3 days into taking my new treatment and while I have not noticed any significant changes in my body I think it is too early to tell, I was told I may need a double dose to get me started so we will wait and see. It would appear I am going to have a run of bad luck with the old Twisted Spine! My go faster stripes are not working and I am slowing down. I am having considerable amounts of pain in my lumbar, right where my donor site scar is, I cannot relax without feeling HUGE pressure on the scar, which is very painful and makes me catch my breath. I even had problems on the toilet this morning and that just gets me frustrated, the simplest of actions that any normal person takes for granted is such an effort for me this week and I end up getting really pissed off!!!!!!! I had to drive my Mother to the airport earlier because Chris is up to his eyes with work so he needed to stay home and finish his "to do list", I have to say it was the most painful drive of my life, ...

I finally managed to get down and see my therapist on Tuesday after I slipped in the street, we were doing the coccyx move and that is a 2 weekly affair, one side is done on 1 week and then the following week she will carry out the move on the opposite side, unfortunately for me I could not get to her the following week so she had to wait until I could get there, she did the other side anyway to see what would happen - so far so good. I am still very stiff and in pain but it is not as bad as it was before, I am slowly repairing myself, trouble is I have a long car journey ahead of me next week as we are going to Murcia on holiday next Tuesday, car journeys are never good for me at the best of times but when I am suffering like this the journey will be a struggle, it also seems that our villa is up a hill so I don't expect I am going to enjoy walking up and down that hill everyday, hopefully it looks worse online than it actually is. At least I am now able to stand and walk bet...

I didn't go to Yoga/Pilates on Thursday, I woke with awful lower back pain, a bit like I have been experiencing over the past months, I struggled to walk and had shooting pains down my legs and shooting pains going across the lumbar, I had to prop myself up when getting from A to B. There was no way I could face the drive down to Marbella and back, the car always make my pains worse, it is not just the position that car seats force you to be in but the bumps and bangs on the road. My muscles on the lower part of my back felt like they were going to go into spasm and that scares me the most because the pain is just un-bearable!!! I wrote to Dr Ayllon to tell him that I wasn't going to make it, I didn't want him or the teacher thinking I couldn't be bothered, more like I couldn't get there on my own steam! So far I have only managed to get to class once a week as every time I go to class, 2 days later I am in pain, most unusual. I appreciate that I no longer have Scol...

I went to Spine School last night, I wasn't looking forward to going after a hard day's work but I will do what my Dr has requested. I had to be there for 7:30 start so I left home 30 minutes before and headed off to Marbella, got there on time but then the receptionist took forever to put my payment through so I ended up having to wait ages and then I was the last person to join the class and I hate walking into a room where everyone is waiting for me, they turn and stare at you. So, basically the class was Yoga but concentrating on the lumbar spine, as a person who has done Yoga for many years it was all new to me and I was surprised by this, there were many new moves that I had never done before, some of the moves I really struggled to do and just couldn't get up like she wanted me to so I had to get up from the floor as I would normally. The instructor was Spanish and the class was all in Spanish so I struggled a bit there, I have a good understanding of the Spanish lan...