Scoliosis: Life, Support & Friends

Hey, fellow ScoNuts. Sorry for my lack of posts, but minus the surgery, there's nothing very interesting about my day-to-day life. At least, nothing none of you aren't already painfully familiar with. I moved in with my boyfriend, and he's being wonderful to me. He does everything for me, despite my protests; consequently, I have become even more sedentary (I didn't realize that was possible), so my pain has skyrocketed. I know I'm gaining weight, too. I still don't have insurance, but I have the option to buy a policy from the company that used to insure me. Of course, who's going to insure me with a spine like mine? At best, it'll be labeled a preexisting condition and excluded completely. So I have to apply and be approved for disability before I can go back to St. Louis, and God only knows how many years that will take. Dr. Bones wanted me to wait ten more years, and now it looks like I might have to. :( I've got some tips about good disabi...

Well, my fame as a blogger seems to be short-lived. Unfortunately I've lost my health insurance, and I won't be having surgery after all. I found out about two weeks ago, but it's been hard to organize my thoughts since then. At first I was extremely relieved, which really surprised me. I hadn't realized I was that scared. Now I'm just crushed. I'm really depressed about it. I had a muscle spasm an hour ago, and it lasted over 15 minutes. I can finally move again, but it's still hurting. Oh, well. Dr. Bones wanted me to wait ten years anyway. Hopefully Dr. STL will still be practicing in ten years.

The Cobra coverage was cheaper than I thought, and my mom said she'll help pay for it. We decided it's worth it to see what Dr. STL has to say, so we're flying up there on Tuesday. My appointment is Wednesday, we're flying back Thursday. If we could stay longer, we would, but it would cost extra to change our tickets. Ugh, the whole quick trip idea was so I wouldn't miss work. I wish I could see my relatives while I'm there. Anyway, I'll post when I get home, probably Friday. I really have no idea what to expect, or even what to hope for. I think I can stop praying for flexibility and symmetry. I think the most realistic thing to hope for is pain relief, and the rest is just icing. I'm pretty pissed off, actually. Why is this happening to me? My x-rays don't look so bad, compared to some others I've seen online. Why am I in so much pain? I look fine from the outside, except for my limp and rib hump. Life sucks sometimes.

Sorry I haven't posted in a while. Not much to talk about. I've been loving the Flexeril, although I've never had dry mouth this strong before. I got new electrodes for my TENS unit, but haven't had to use them yet. I've had quite a bit of free time on my hands - I lost my job. The pain seems to all but disappear when I don't have to work! I doubt I'll be able to afford Cobra coverage, but I'm gonna try my best to find the money somehow. Otherwise I have no way to take care of myself until I get a new job with insurance. The surgery is off. I found out today it's way more expensive than my mom or I had imagined. Six figures. I doubt that even includes the hospital stay, rehab, plus all the assorted "little" fees, like medication and the staff's fees - radiologists, ahoy! I have no idea what the doctor would even do, so I kinda resent the lady there telling me that. It really took the wind out of my sails. Her saying that killed the onl...