Living with Scoliosis. Share the highs and lows of your life and how you cope with Scoliosis. This blog is dedicated to Scoliosis patients worldwide, we have a few authors who will also bring you information from the world of Scoliosis. We will discuss pain relief, surgery, bracing, adolescent and adult scoliosis. I am a patient with a Harrington Rod, I am post surgery 20 years (2009), I like to share my Scoliosis ups and downs with you.
ScoliosisJournal recently reported about Cotrel-dubousset instrumentation for the correction of AIS. Long term results with an unexpected high revision rate.
Authors: Franz Mueller and Herbert Gluch
Background For many years, the CD instrumentation has been regarded as the standard device for
the surgical correction of adolescent idiopathic scoliosis (AIS). Nevertheless, scientific
long-term results on this procedure are rare. Therefore, we conducted a retrospective
follow-up study of patients treated for AIS with CD instrumentation and spondylodesis.
Methods A total of 40 patients with AIS underwent CD instrumentation in our department within
3 years and between 1990 and 1992. For the retrospective analysis, first all the patient
documents were reviewed, and pre-/postoperative X-ray images as well as those at the
latest follow-up were analysed. Furthermore, it was attempted to conduct a clinical
survey using the SRS-24 questionnaire, which was sent to the patients after a preceding
announcement on the phone.
Results Radiologically, the frontal main curvature was improved from a preoperative angle
of 69.2degrees to a postoperative angle of 35.4degrees, and the secondary curvature
was improved from a preoperative angle of 42.6degrees to a postoperative angle of
20.5degrees. The latest radiological followup at average 57.4 months post surgery
showed an average loss of correction of 9.6degrees (main curvature) and 4.6degrees
(secondary curvature), respectively.Within the first 30 days post surgery, 3 out of
40 patients (7.5%) received early operative revision for the dislocation of hooks
or rods.At an average of 45.7 months (range 11 to 142 months), 19 out of 40 patients
(47.5%; including 2 patients with early revision) received late operative revisions:
The reasons were late infection (10 out of 40 patients; 25%) with the development
of fistulae (7 cases) or putrid secretion (3 cases), which was resolved with the complete
removal of instrumentation after all. The average time until revision was 35.5 months
(range 14 to 56 months) after CD instrumentation. Furthermore, complete implant removal
was necessary in 8 out of 40 patients (20%) for late operate site pain (LOSP). The
average time until removal of instrumentation was 62.7 months (range 18 to 146 months)
post surgery; and one patient received partial device removal for prominent instrumentation
11 months post surgery. Altogether, only 22 out of 40 CD instrumentations (55%) were
still in situ. After an average period of 14.3 years post surgery, it was possible
to follow-up 14 out of 40 patients (35%) using the SRS-24 questionnaire. The average
score was 93 points, without showing significant differences between patients with
or without their instrumentation in situ.
Conclusions Retrospectively, we documented for the first time a very high revisions rate in patients
with AIS and treated by CD instrumentation. Nearly half of the instrumentation had
to be removed due to late infection and LOSP. The reasons for the high rate of late
infections with or without fistulae and for LOSP were analysed and discussed in detail.
I was writing on my website yesterday about Flavonoids and I quote "Many flavonoids, as in parsley, have a diuretic action; some as in licorice, are antispasmodic and anti inflammatory; others are antiseptic."
Anyway, my period started 2 days ago and I was feeling good about that because usually I have immense pain from my Scoliosis when my period comes and because it was day 2 and I had, had no pain I was feeling really happy about that and I wondered if that had anything to do with the licorice I had been eating the week leading up to my period?
The happy times didn't last long as last night the pain was soooooo awful and I didn't know what to do with myself, shifting around in my seat, then standing up and walking around with my hands grasping my lower back, then the tears came, but I wasn't crying (if you know what I mean), the pain was so intense that water just started coming from my eyes, I am in too much pain to actually cry - that would jar my back too much…
Clothes shopping for people who have Scoliosis has always been an issue, either you hide away from the public or you let it all hang out, whichever one you are you are reminded that you have Scoliosis when you go to the shops for new clothes, majority of us come home depressed. Clothes shopping with Scoliosis is a constatnt reminder that we are more curvier than most!!!!
We have been discussing clothes and rib humps and scars on the group, and we have some very interesting views to clothes and Scoliosis.
Unfortunately, there are many Scoliosis patients out there who are not quite as aggressive as myself as I tend to run with the attitude of "who cares what others think of me, I have Scoliosis, so what!", I wear up to date fashion and I don't let my Scoliosis dictate what I can and cannot wear to some extents, of course I don't wear what I am uncomfortable in or what does not suit me but I certainly will not shy away from going to the beach because of my lopsided-ness, …
I have been receiving many emails about memory foam and whether it actually works.
I will let you into the secrets of my good night's sleep and what I think about memory foam and why it has helped me so much, for starters I no longer sleep with Valium, I simply don't need it.
The memory foam that I sleep on was invented by a guy in the UK, who, unfortunately does not have the dollars behind him that his competitors like Tempur do, therefore he has not been as recognised as a brand name like he should have been - it's all down to money, and what a shame that is.
I have heard great reports about Tempur mattresses and I have tried one, however, I have to say that their product is not as wonderful as the OroMed Sleep System that I use - you understand that this is MY personal opinion and I am entitled to have one ;)
I started my quest for memory foam 4 years ago, I just couldn't sleep and was getting beyond my tether of walking around the house at night in tears because I was …