Living with Scoliosis. Share the highs and lows of your life and how you cope with Scoliosis. This blog is dedicated to Scoliosis patients worldwide, we have a few authors who will also bring you information from the world of Scoliosis. We will discuss pain relief, surgery, bracing, adolescent and adult scoliosis. I am a patient with a Harrington Rod, I am post surgery 20 years (2009), I like to share my Scoliosis ups and downs with you.
ScoliosisJournal reported recently about Adolescents, bracing and the results from an everyday clinic using Thermobrace.
Authors: Sabrina Donzelli, Fabio Zaina and Stefano Negrini
The effectiveness of bracing relies on the quality of the brace, compliance of the
patient, and some disease factors. Patients and parents tend to overestimate adherence,
so an objective assessment of compliance has been developed through the use of heat
sensors. In 2010 we started the everyday clinical use of a temperature sensor, and
the aim of this study is to present our initial results.
Population: A prospective cohort of 68 scoliosis patients that finished at least 4
months of brace treatment on March 31, 2011: 48 at their first evaluation (79% females,
age 14.2+/-2.4) and 20 already in treatment. Treatment: Bracing (SPoRT concept); physiotherapic
specific exercises (SEAS School); team approach according to the SOSORT Bracing Management
Methods A heat sensor, "Thermobrace" (TB), has been validated and applied to the brace. The
real (measured by TB) and referred (reported by the patient) compliances were calculated.
Statistics. The distribution was not normal, hence median and 95% interval confidence
(IC95) and non-parametric tests had to be used.
Results Average TB use: 5.5+/-1.5 months. Brace prescription was 23 hous/day (h/d) (IC95 18-23),
with a referred compliance of 100% (IC95 70.7-100%) and a real one of 91.7% (IC95
56.6-101.7%), corresponding to 20 h/d (IC95 11-23). The more the brace was prescribed,
the more compliant the patient was (94.8% in 23 h/d vs. 73.2% in 18 h/d, P<0 .05=".05" 0-12.95="0-12.95" 0="0" 1="1" 29="29" 45="45" 90="90" and="and" at="at" been="been" compliance="compliance" days="days" had="had" hour="hour" involved="involved" least="least" non-wearing="non-wearing" of="of" patients.="patients." patients="patients" percent="percent" prescribed.="prescribed." remained="remained" sixty="sixty" span="span" the="the" were="were" what="what" within="within">0>
Conclusion This is the first study using a TB in a setting of respect for the SOSORT criteria
for bracing, and it states that it is possible to achieve a very good compliance,
even with a full time prescription, and better than what was previously reported (80%
maximum). We hypothesize that the treating team (SOSORT criteria) plays a major role
in our results. This study suggests that compliance is neither due to the type of
treatment only nor to the patient alone. According to our experience, TB offers valuable
insights and do not undermine the relationship with the patients.
Download the PDF version about the results of the Thermobrace
I was writing on my website yesterday about Flavonoids and I quote "Many flavonoids, as in parsley, have a diuretic action; some as in licorice, are antispasmodic and anti inflammatory; others are antiseptic."
Anyway, my period started 2 days ago and I was feeling good about that because usually I have immense pain from my Scoliosis when my period comes and because it was day 2 and I had, had no pain I was feeling really happy about that and I wondered if that had anything to do with the licorice I had been eating the week leading up to my period?
The happy times didn't last long as last night the pain was soooooo awful and I didn't know what to do with myself, shifting around in my seat, then standing up and walking around with my hands grasping my lower back, then the tears came, but I wasn't crying (if you know what I mean), the pain was so intense that water just started coming from my eyes, I am in too much pain to actually cry - that would jar my back too much…
Clothes shopping for people who have Scoliosis has always been an issue, either you hide away from the public or you let it all hang out, whichever one you are you are reminded that you have Scoliosis when you go to the shops for new clothes, majority of us come home depressed. Clothes shopping with Scoliosis is a constatnt reminder that we are more curvier than most!!!!
We have been discussing clothes and rib humps and scars on the group, and we have some very interesting views to clothes and Scoliosis.
Unfortunately, there are many Scoliosis patients out there who are not quite as aggressive as myself as I tend to run with the attitude of "who cares what others think of me, I have Scoliosis, so what!", I wear up to date fashion and I don't let my Scoliosis dictate what I can and cannot wear to some extents, of course I don't wear what I am uncomfortable in or what does not suit me but I certainly will not shy away from going to the beach because of my lopsided-ness, …
I have been receiving many emails about memory foam and whether it actually works.
I will let you into the secrets of my good night's sleep and what I think about memory foam and why it has helped me so much, for starters I no longer sleep with Valium, I simply don't need it.
The memory foam that I sleep on was invented by a guy in the UK, who, unfortunately does not have the dollars behind him that his competitors like Tempur do, therefore he has not been as recognised as a brand name like he should have been - it's all down to money, and what a shame that is.
I have heard great reports about Tempur mattresses and I have tried one, however, I have to say that their product is not as wonderful as the OroMed Sleep System that I use - you understand that this is MY personal opinion and I am entitled to have one ;)
I started my quest for memory foam 4 years ago, I just couldn't sleep and was getting beyond my tether of walking around the house at night in tears because I was …