Scoliosisnutty & Scoliosis Association

By -

I have been a member of the Scoliosis Assocation UK for a while now and I receive their magazine and keep up to date with what is happening in the UK with regards to Scoliosis.

For those who are not already members then I would visit Scoliosis Association UK, doesn´t matter if you are in the UK or abroad, they will accept members from anywhere, just like Scoliosisnutty does.

Their magazine covers fund raising events that you can get involved with, the campaign fund, regional news and their secretaries, accounts from people going through diagnosis, surgery, a section for children called "Twist and Shout" and a feature at the back with letters to the editor, it really does help keep people connected.

In their issue number 81, November, 2009, I noticed that my blog was featured and I was gobsmacked, I never expected them to feature me but their noticeboard page has a little bit about me and the blog I run, I wanted to share this with you, I have scanned the page where I am featured.


I have also cut out the section that discusses me so you can see the text they wrote about me also.



About the Scoliosis Association UK
The Scoliosis Association (UK) was founded in 1981. It is the only independent support group for scoliosis in the UK.There is no cure for scoliosis, only corrective treatment for the twisting and curving spine. SAUK aims to provide information about scoliosis, eliminate fear and stigma, and offer contacts for shared experiences, because: 


  • adolescents need support and reassurance
  • parents need information and contact with others who have been through the same situation
  • older people need help with pain
  • the public need to be aware of the importance of early detection of scoliosis in children

The SAUK forgot to mention that Scoliosisnutty is also a support group in the UK for scoliosis patients, albeit we are not a charity ;)

Popular posts from this blog

Ugly Betty star Wilhelmina has Scoliosis

By -
Image
Ugly Betty star Vanessa Williams has Scoliosis. Before Vanessa became a famous star through her seasons of Ugly Betty she was to be a dancer. Vanessa was recently nominated for an Emmy for the 2nd time for her role as the wicked diva Wilhelmina Slater in Ugly Betty. For those of you who have not heard of Ugly Betty, it is an ABS comedy hit show dedicated to Mode magazine and the world of fashion. Vanessa Williams wanted to be a professional dander with the Joffrey Ballet until those plans were cut short by Scoliosis. (curvature of the spine) Vanessa is reported to have said "It derailed me for a while,". "It was so severe I had to have a spinal fusion where they put 8-inch metal rods and screws in my spine. I just took off one year where I didn't do any physical activity. But then, of course, I was terrified. It's so strange … It felt like having an operation and then healing and going back to your real body. It was really like having a new center of gravity and ...
Read more

Curving again?

By -
Image
I have noticed just recently that I seem to be leaning left again and walking is becoming a real struggle, I only noticed this the other day when I had my jeans on and I saw myself in the mirror (not something I do very often especially as it is cold). I was shocked, my right side is fairly straight and flat (not too much flab) - my left side is almost folded in half and I can wedge my hand in between the fold that appears there - I look awful!!!!! Is it even possible for me to start curving again and my Scoliosis show signs again after a Harrington rod surgery 19 years ago? I never used to be conscious over my body years ago and I know it changes the older I get but I am no bigger than I was when I got married at age 24 and I am now 31, I hate my clothes I do not feel comfortable at all and I hate it when people look at me when I am walking down the street in a sideways crab walk!! I have even added a picture of my back, I never thought I would share that with the world because I am ...
Read more

Scoliosis and Memory Foam Mattresses

By -
Image
I have been receiving many emails about memory foam and whether it actually works. I will let you into the secrets of my good night's sleep and what I think about memory foam and why it has helped me so much, for starters I no longer sleep with Valium, I simply don't need it. The memory foam that I sleep on was invented by a guy in the UK, who, unfortunately does not have the dollars behind him that his competitors like Tempur do, therefore he has not been as recognised as a brand name like he should have been - it's all down to money, and what a shame that is. I have heard great reports about Tempur mattresses and I have tried one, however, I have to say that their product is not as wonderful as the OroMed Sleep System that I use - you understand that this is MY personal opinion and I am entitled to have one ;) I started my quest for memory foam 4 years ago, I just couldn't sleep and was getting beyond my tether of walking around the house at night in tears because I ...
Read more