For those who are not already members then I would visit Scoliosis Association UK, doesn´t matter if you are in the UK or abroad, they will accept members from anywhere, just like Scoliosisnutty does.
Their magazine covers fund raising events that you can get involved with, the campaign fund, regional news and their secretaries, accounts from people going through diagnosis, surgery, a section for children called "Twist and Shout" and a feature at the back with letters to the editor, it really does help keep people connected.
In their issue number 81, November, 2009, I noticed that my blog was featured and I was gobsmacked, I never expected them to feature me but their noticeboard page has a little bit about me and the blog I run, I wanted to share this with you, I have scanned the page where I am featured.
I have also cut out the section that discusses me so you can see the text they wrote about me also.
- adolescents need support and reassurance
- parents need information and contact with others who have been through the same situation
- older people need help with pain
- the public need to be aware of the importance of early detection of scoliosis in children
The SAUK forgot to mention that Scoliosisnutty is also a support group in the UK for scoliosis patients, albeit we are not a charity ;)