Living with Scoliosis. Share the highs and lows of your life and how you cope with Scoliosis. This blog is dedicated to Scoliosis patients worldwide, we have a few authors who will also bring you information from the world of Scoliosis. We will discuss pain relief, surgery, bracing, adolescent and adult scoliosis. I am a patient with a Harrington Rod, I am post surgery 20 years (2009), I like to share my Scoliosis ups and downs with you.
Scoliosis journal reported comparisons of conservative and surgical treatment in patients with Scoliosis and Prade Willi Syndrome
Authors:Hans-Rudolf Weiss and Deborah Goodall
Background In children with Prader Willi syndrome (PWS), besides growth hormone (GH) therapy, control of the food environment and regular exercise, surgical treatment of scoliosis deformities seems the treatment of choice, eventhough the risks of spinal surgery in this specific population is very high. Therefore the question arises as to whether the risks of spinal surgery outweigh the benefits in a condition, which bears significant risks per se. The purpose of this systematic review of the Pub Med literature was to find mid or long-term results of spinal fusion surgery in patients with PWS, and to present the conservative treatment in a case study of nine patients with this condition.
Methods Types of studies included; all kinds of studies; retrospective and prospective ones, which reported upon the outcome of scoliosis surgery in patients with PWS. Types of participants included: patients with scoliosis and PWS. Type of intervention: surgery. Search strategy for identification of the studies; Pub Med; limited to English language and bibliographies of all reviewed articles Nine patients with PWS from our data-base treated conservatively have been found, being 19 years or over at the time this study has been performed. The results of conservative management are described and related to the natural history and treatment results found in the Pub Med review.
Results From 2210 titles displayed in the Pub Med database with the key word being "Prader Willi syndrome", 5 different papers were displayed at the date of the search containing some information on the outcome of surgery and none appeared to contain a mid or long-term follow-up. The PWS patients treated conservatively from our series all stayed below 70degrees and some of which improved.
Discussion If the curve of scoliosis patients with PWS can be kept within certain limits (usually below 70 degrees) conservatively, this treatment seems to have fewer complications than surgical treatments. The results of our retrospective study of nine patients demonstrate that scoliosis in this entity plays only a minor role and surgery is unnecessary when high quality conservative management exists.
Conclusions There is lack of the long-term follow-up studies in post-surgical cases in patients with PWS and scoliosis. The rate of complications of spinal fusion in patients with PWS and scoliosis is very high and the death rates have been found to be higher than in patients with Adolescent Idiopathic Scoliosis (AIS). The long-term side-effects of the intervention are detrimental, so that the risk-benefit ratio favours the conservative approaches over spinal fusion surgery.
I was writing on my website yesterday about Flavonoids and I quote "Many flavonoids, as in parsley, have a diuretic action; some as in licorice, are antispasmodic and anti inflammatory; others are antiseptic."
Anyway, my period started 2 days ago and I was feeling good about that because usually I have immense pain from my Scoliosis when my period comes and because it was day 2 and I had, had no pain I was feeling really happy about that and I wondered if that had anything to do with the licorice I had been eating the week leading up to my period?
The happy times didn't last long as last night the pain was soooooo awful and I didn't know what to do with myself, shifting around in my seat, then standing up and walking around with my hands grasping my lower back, then the tears came, but I wasn't crying (if you know what I mean), the pain was so intense that water just started coming from my eyes, I am in too much pain to actually cry - that would jar my back too much…
Clothes shopping for people who have Scoliosis has always been an issue, either you hide away from the public or you let it all hang out, whichever one you are you are reminded that you have Scoliosis when you go to the shops for new clothes, majority of us come home depressed. Clothes shopping with Scoliosis is a constatnt reminder that we are more curvier than most!!!!
We have been discussing clothes and rib humps and scars on the group, and we have some very interesting views to clothes and Scoliosis.
Unfortunately, there are many Scoliosis patients out there who are not quite as aggressive as myself as I tend to run with the attitude of "who cares what others think of me, I have Scoliosis, so what!", I wear up to date fashion and I don't let my Scoliosis dictate what I can and cannot wear to some extents, of course I don't wear what I am uncomfortable in or what does not suit me but I certainly will not shy away from going to the beach because of my lopsided-ness, …
I have been receiving many emails about memory foam and whether it actually works.
I will let you into the secrets of my good night's sleep and what I think about memory foam and why it has helped me so much, for starters I no longer sleep with Valium, I simply don't need it.
The memory foam that I sleep on was invented by a guy in the UK, who, unfortunately does not have the dollars behind him that his competitors like Tempur do, therefore he has not been as recognised as a brand name like he should have been - it's all down to money, and what a shame that is.
I have heard great reports about Tempur mattresses and I have tried one, however, I have to say that their product is not as wonderful as the OroMed Sleep System that I use - you understand that this is MY personal opinion and I am entitled to have one ;)
I started my quest for memory foam 4 years ago, I just couldn't sleep and was getting beyond my tether of walking around the house at night in tears because I was …