I had spinal fusion surgery from T10 to L3 in July 1996. I only got health insurance a year ago, so I just decided last summer to get a doctor and have a checkup and a new set of x-rays. (It had been 10 years.) Long story short, I'm having another surgery next month. It's been twelve years since my first surgery, so my memories are a little fuzzy now. I was under the impression that the first surgery would cure my scoliosis, end my pain, and not limit my activities at all.
I only realized the other day when reading Simone's story that this has happened to others. I'm not quite sure if my first surgeon actually told me this, or if I just assumed it and no one ever told me the truth. My parents thought the same, so who knows. Anyway, I started physical therapy last fall, and I didn't realize how upset I was until I burst out crying when I first told my story to my therapist. I apologized profusely and he said, "No, it's okay, a lot of people cry." That confused me. I thought, Well, what's wrong with them, then? I explained my whole story and joked that I have no pain tolerance, which is what I've been telling myself and everyone else for years. He looked at me like I had two heads and said, "No, you have a *very high* pain tolerance. You're just in pain all the time." It had never occurred to me before that the pain was not normal. I just thought it was something I had to put up with, and I was just a sissy. Have any of you thought that and found out later you were either misled or outright lied to?
My name's Cupcake, btw.