Scoliosis: Life, Support & Friends

Jess contact How To Look Good twisted to talk to us about her Scoliosis Charity Ball which is taking place on the same day as our own event in York.   Jess is 15 years old and is raising money for Scoliosis, her event will be held at Jocasta's Lincoln.    Jess says "Scolio is a charity that I set up which sends gifts and grants wishes to children around the UK with serious conditions and illnesses. I set up Scolio after an operation to correct my Scoliosis where unfortunately I suffered rare complications (I have now made an almost full recovery)"   Tickets for the ball are £40 which includes a welcome drink, 3 course meal, coffee, raffle, disco, auction, photographer and live entertainment by Off Limits!    This will be a brilliant night which shouldn't be missed, says Jess.   "I really hope you are able to join us as it would be great to see as many people as possible there."   For tickets to the Scolio Ball, please contact Jess vi...

ScoliosisJournal recently reported about physical therapy intervention studies on idiopathic scoliosis-review with the focus on inclusion criteria. Authors: Hans-Rudolf Weiss, MD, Elisabete Santos Leal, OMT, Ulrike Hammelbeck BSc Background Studies investigating the outcome of conservative scoliosis treatment differ widely with respect to the inclusion criteria used. This study has been performed to investigate the possibility to find useful inclusion criteria for future prospective studies on physiotherapy (PT). Materials and methods A PubMed search for outcome papers on PT was performed in order to detect study designs and inclusion criteria used. Results Real outcome papers (start of treatment in immature samples/end results after the end of growth; controlled studies in adults with scoliosis with a follow-up of more than 5 years) have not been found. Some papers investigated mid-term effects of exerci...

If there's one thing I've gotten very good at, it's complaining. Not about pain, mind you. Pain is inevitable and there is no point in complaining about it beyond the average "Ow, I hurt" and "Darling could you pretty please get me a heat pack?" followed by the batting of eyelashes. No, there is no point in complaining about pain. Unless you are really, super mad. I'm talking rage-infused-throttling-mind-blowing-full-of-hate mad. And over the holidays, literally a day before I had to pack up my world and move to a new city (incidentally, big cities are pretty sweet), I got mad . You see, I've been battling with the Alberta Government for some time to get AISH support. AISH either stands for Assured Income for the Severely Handicapped or As If, Shit, Hahahaha! I'm beginning to lean slightly towards the latter simply from this experience. I can't work full time. That's a given because of the pain. I also can't really afford my m...

As we seem to be blogging about people raising money of late, Laura pone of our very own moderators on the How To Look Good Twisted fan page, sent me some details of other people who are raising money for the SCF. Teamscoliosis will be running 13.1 miles which starts and finishes at the O2 Arena, London, 28th October, 2012. The people who are running this 13 miles were inspired to do this by one of our very own Moderators, Laura Campbell. They said "Our friend Laura has suffered with scoliosis since she was 13. At 18 her curve had progressed to 72 degrees and she underwent 10 hours of major life threatening surgery at the University Hospital of North Staffordshire, when surgeons drilled titanium rods and screws into her spine to straighten it. After three days in intensive care and a week in hospital, Laura made a great recovery. However, she has since broken her back twice and two years ago her spine showed further signs of curving. She has recently had to have three m...

Dan Bell contact me via email to ask if we can share the news about the fund raising he and his girlfriend Nichola Stott will be doing for Scoliosis Research. They will be putting on their running shoes to raise money for the Scoliosis Campaign Fund. Dan had corrective surgery at the age of 13 to correct Scoliosis which is curvature of the spine. The operation involved the removal of 6 discs and the spine being fused, along with 2 titanium rods inserted in his back. "This event is all about giving a little back to a charity that does great work and also to raise some awareness of the condition. We really hope you can donate even a small amount in an effort to hit our target." On Saturday 10th November Dan will be taking part in the Brooks Hell Runner Down South, The Brooks HellRunner Hell Down South takes place at Longmoor Military Training Camp, near Bordon in Hampshire. Brooks HellRunner offers trail running at its toughest and most enjoyable. 10 -12 miles...

Well, it's been a while. I was fortunate to finally obtain full time employment outside of the retail sector (gasp) which has made earning money a bit easier on my spine. It has been a sad couple weeks for reasons I won't go into right now. Instead, I want to present you lovely folks with a bit of information. See, I lost my insurance coverage in April. Problematic, as I am a 'pre-existing condition' felon, and as such, the plans available to me through my regional insurance companies are limited. And do any of them cover my most important, most expensive medication? No, because that would make sense. So, since April I have been on a crusade to find coverage for my BuTrans patches. You think it wouldn't be hard, given that patches are more difficult to abuse and they provide long term (a week!) coverage that is delivered in even strides. None of the up and down of oral medications. BuTrans really improved my life when I began taking it, which says a lot given ho...

Sarah who is a member of our How To Look Good twisted Fan Page on Facebook, wanted to share some news with us about a new project they are undertaking with another not for profit organisation Simple Stuff Works CIC - they are looking to support four young people to use therapeutic night positioning. There is no cost to the individuals involved (they are setting aside just under £10k for the project to include all equipment) About PosturalCare We are looking for FOUR young people with idiopathic scoliosis to work with us on a fully funded project. BACK TO BASICS is just that, we want to see what happens when we address a really basic element of a person’s day - the position they sleep in. Young people spend on average three times longer in bed than they do in school, if it makes sense to you to think about this time then please read on! Back to Basics is a small, exciting project being funded by 2 Social Enterprises, Postural Care CIC and Simple Stuff Works CIC. Both ...